Ehlers-Danlos Syndrome Testimonials

Ehlers-Danlos syndrome and mastocytosis: reduction in pain and fatigue

I have been diagnosed with Mastocytosis and Ehlers Danlos Syndrome (EDS), a rare inheritable connective tissue disorder. I have both classical and hypermobile types of EDS. I was first diagnosed with fibromyalgia in my 20s, but that was before they knew it was EDS. A lot of us with EDS have multiple diagnoses, and we often have a lot of pain and a lot of fatigue. I also have frequent headaches, and I have a lot of neck and back pain. I have also been diagnosed with degenerative disc disease of the spine.

After about four days using Banjo I felt a big change in the amount of energy I had. I also began to notice some reduction in pain. I had less pain in my small joints to start with. The pain in my large joints continued for some time. After about a month of taking Banjo the pain in my small joints was much, much better and I had less pain in the larger joints, but those continued to give me a bit of trouble.

I have now been taking Banjo for about two months and I  have noticed a marked difference in the joint  pain, headaches, back and neck pain. I take one to two  tablets of Banjo daily. After taking Banjo I notice a significant  increase  in my energy level.

I Kinda lost hope with Dr’s always wanting to shove synthetic drugs at people to take  instead of taking something natural for the body. As it states in our Good “Truth” book, there is nothing ever lose, but one can gain the natural effects and reap the benefits.

Dr.’s say do not take anything Natural with the Mastocytosis, well I can tell you that  is just untrue for some people…

Some nutrients that “God” put on this earth our body needs. And we need to see that our body is given these nutrients because if not bodies will start to fail us ..

Then God said, “I give you every seed-bearing plant on the face of the whole earth and every tree that has fruit with seed in it. They will be yours for food. And to all the beasts of the earth and all the birds of the air and all the creatures that move on the ground everything that has the breath of life in it I give every green plant for food.” And it was so.

Genesis 1:29

Thank ~You Dr. Steve for caring enough about people  I appreciate it….

Viktoria Kawka

EDS: More energy, less pain, better life

I began using Banjo about 6 months ago when I saw a post about it on an EDS board. Being in chronic pain for five years due to EDS, I have tried everything that has hit the market (Western and Eastern Medicines). So, trying Banjo was a no brainer!!

It has been easy to use, even though my stomach is very sensitive.  Banjo has given my Immune system support with all the antioxidant and anti inflammatory protection.  I have had excellent pain relief and energy boosting results after trying Banjo for about two weeks.

It has been years since I could exercise and still have the energy to finish the day out with out lying in bed.  I used to have to plan my day around the house, because I never knew when my energy would be gone.  Now, I am able to spend all day with my children and still have enough energy to spend the evenings with my husband.  Disneyland, my favorite place to go, I had to rent a wheelchair to get around.  Now, I can spend four hours there on my feet.  Each day, I am getting stronger and stronger from Banjo!  We all know that movement is life and EDSer have to make the muscles strong!  I am so blessed that I have had the chance to take Banjo.  I will never go without it!

Lynelle Ring

Ehlers-Danlos syndrome (EDS) flare-up immediately relieved by Banjo

I had a flairup [EDS] with my hips, knees and ankles hurting. After a couple days I tried Banjo and within hours the pain was gone. I thought that it couldn’t be the Banjo working so fast, so when the pain came back I took some more and it worked again.

Steve Cardin

Northwest Ehlers-Danlos National Foundation Support Group

Less pain, more energy: Ehlers-Danlos syndrome, neck and knee pain

Dear Dr. Roberts;

Here is my testimonial. When I first wrote to you I felt like a fish swimming in a fishbowl, all alone with my EDS pain and chronic illness. I was ready to try anything and at the point of giving up.

Just a few of my conditions were;

– bulging/herniated C4,C5,and C6

– Ruptured L-5 L6-S1 with tears between 5 and 6

– torn meniscus in left knee

– Right carotid dissection intra and extracranial w/psuedoanerysm under skull and in neck (still there and caused constant, excrutiating pain) 4mm at last MRA

– skins tears easily, bruising horrendous

– joints pop everytime I move – I sound like rice krispies

I was diagnosed with a variant form of EDS in ’04 as my skin cell biopsy showed it wasn’t VEDS.

The meds I was on: Plavix 75 once daily, aspirin 81mg,  Toprol 100 mg, Lisinopril 10 mg, Catapres .1 twice daily, flexeril 5 mg once, zanaflex 4 mg once, Celexa 60 mg once, Lipitor 40 mg., Phenerghan 25 mg PRN, Xanax .25 PRN, Percocet 10 mg PRN (not working anymore I have developed a tolerance),  Stadol shot at ER standing order for vasospam and migraine, Vit C 5 grams daily, Niacin, Fish Oil and Flax Seed oil.

I had tried Lyrica but it had terrible side effects causing vertigo and vomiting.

When I first wrote to you the worst pain was in my lower back and my left knee and horrible pain in my neck because of the psuedoanerysm.

I could not stand up straight or move without pain radiating down my left leg and spasms in my back. I had been to PT for the last year with little help as my joints are lax and I can not do many of the exercises without popping.

Despite all the meds and every therapy I remained in extreme pain. I was so tired of the extreme pain that I keep myself isolated at home much of the time. I have a reacher, a walker, and a wheelchair but refuse to get in the chair as I don’t want to lose my mobility.

I have had every kind of “-ologist” there is. I was tired of doctors and felt hopeless. Most of my doctors don’t know much about EDS and can only treat my symptoms, as surgery is not an option for me.

When I saw your site and read the testimonials I became convinced that I had severe inflammation. I wrote you on facebook and you sent me Banjo.

After using Banjo for 4 days the neck pain was GONE! I definitely had more energy. My back pain was better but not gone and my left knee with the torn meniscus would still hurt, but only if I moved it in a certain way.

I felt much better overall and the best part was that I couldn’t feel that my neck felt normal for the first time in 5 years! I had been using narcotics with no relief for almost five years and after just two days of Banjo I quit the narcotics. That is the greatest relief as I was so tired of feeling drugged.

Thanks a million! I am loving the pain free neck and am able to bend knee easier. And thank you for your dedication to pain relief with a non-addictive medication. I am very grateful to have an alternative to narcotics which I hated because of the side-effects.

I believe that God sent you to me through FB.

Respectfully and sincerely submitted,

Mary Dunn